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Injury Overview

SPINAL CORD INJURY - THE BIG PICTURE

WHAT YOU NEED TO KNOW FOR THE BEST CARE

What is Spinal Cord Injury?

You might be reading this because you or the person you care about has a spinal cord injury.  A spinal cord injury can happen at a different speed for each person.  Your doctor may have told you about SCI, but you might still have more questions about SCI. Read these resources to learn more about SCI.

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Spinal Cord Injury

National Institute of Neurological Disorders

and Stroke

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Spinal Cord Injury:

First 90 Days

Sam Maddox

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Paralysis Resource Center Fact Sheet

Christopher and Dana Reeve Foundation

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What is a Spinal Cord Injury

United Spinal Injury Association

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What is Rehab?

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Important Information about Seeking
Care after Spinal Cord Injury

Spinal cord injury can be complex. It’s important to go to hospitals with specialized services for people with SCI, which can be hard to find in some areas. Don’t be afraid to ask your doctor about their experience treating SCI as well as resources in finding SCI specialized care. If you are having a hard time finding SCI specialized care, you may contact the United Spinal Association Resource Center.

What Typically Happens After Someone Experiences SCI?

Someone with SCI is usually sent to a hospital for instant care for the injury. Sometimes they are moved from one hospital to another with SCI specialized services. For example, a person at a small community hospital might be moved to a Level 1 trauma center. Often surgery is needed to stabilize the spine. After surgery, the individual will be sent to an intensive care unit, where they will stay until they are stable. Then, individuals are usually sent to an inpatient rehabilitation center [link to how to choose inpatient rehabilitation]. Inpatient rehabilitation strengthens individuals and prepares them for life after the injury. Some are moved to a skilled nursing facility [link to how to choose a SNF] for more care before returning home. There are different paths after SCI. Some people face a health concern, sending them to a SNF or long-term acute care hospital before a complete recovery.  Either way, the end goal is for SCI individuals to get specialized SCI care to restore their movement. At home, they may need to join outpatient therapy programs for more recovery. According to the National Spinal Cord Injury Statistical Center, average time spent in acute care after the injury is 19 days, and average time spent in rehabilitation is 37 days. This can be different for each person.  This short time means that you need to get ready for life after the injury quickly.  As one study participant put it: “I feel the time in rehab is so short, it’s hard to get everything you need.” Making the most out of time in rehab benefits SCI patients.

Types of Healthcare Institutions You May Encounter after SCI

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Legal Aid

Engage Josh Basile (and related sites)
The Legal Aid Society of Cleveland
Information about trusts - just that they exist, and resources for legal assistance to help set up - often this links with Medicaid…

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